Day 30: Look At Me, Ma!!

31 Oct

It has been some days since the doctor declared me MS free.  I knew that this meant that my body was going to begin the healing process.  I planned on a few signs along the way, and we have celebrated them here already: my cognitive thinking improvements – which returned to me the joy of reading a good book, the ease with which I found myself able to write longhand for more than ten minutes at a time.  Writing anything at all has become a much easier task for me, as I do not have to pause and search for words in my brain like I once did.  I also realized that I could handle the heat of a hot shower and that was great!

Now, let’s talk about what happened today when the good doctor gave me the green light to leave the hospital grounds and give this new, still a little wobbly, body a good road test.  I am just going to use bullet points here, and those who have watched me decline over the years will immediately know just how cool some of this stuff is.  Please remain seated until the end of the show, as I will expect a standing round of applause at the finish.  Are you ready?  Let’s go:

  • First off, it is cold in Russia.  I knew this, so I wore my coat.  That’s not weird for anyone.  What is weird for me is that, CANE FREE, I strolled along like a regular person and, WITHOUT EVEN LOOKING, found the zippers, buttons and snaps needed to bundle up.  All while walking, no pausing and with no cane!!  Anonymous people walked passed me, clueless as to the miracle they were witnessing.  I was dumbfounded.
  • There were puddles in the road, and I did not stop for a second to examine the puddle, decide whether to side step, grab Eric’s arm, or just go ahead and get my foot wet.  No, sir, I just stepped right over those puddles, like a regular person.
  • I have to repeat a bullet point here that this was all done CANE FREE and I was not swaying to and fro and making Eric’s steps miserable with his constant need to balance me.
  • The marketplace here is really just a row of shops and each one has about 5-10 steps to get in.  Because I was being extra cautious about germs, I used no handrails, but then I realized, I DIDN’T NEED THEM ANYWAY.
  • We stopped into one little shop to buy me a new pair of gloves, because I cannot walk with my hands in my pockets because I need my arms swinging to keep me upright.   Silly us.  I still got the gloves, because they were cool and, oh so Russian chic, but I still managed to keep my hands pocketed all the same, just because I couldn’t believe I could.
  • We went into a little cafe, the one Eric has been frequenting during his long days, and sat and had some tea.  I sat there, marveling at how easily I added sugar to my tea, and handled the tea bag with no sloppy mess.  I kept looking around, wondering if anyone else was noticing just how HUGE all this was, but they just kept at their chatting, totally unaware.
  • We popped into a little make-up shop, because I am still me and I wanted a splash of makeup to help me feel prettier about this bald head and I walked around that place and took my sweet time.  I am used to rushing from task to task to conserve energy for the day – always conserving, but not today.
  • It was about this time that the stem cells in my legs were really beginning to flex their muscles and I began to feel the fatigue of the chemo and all, so we began our walk back to the hospital.  Eric escorted me and my packages back to my room, both of us elated at what we knew was to be the first of many, many days with no more MS getting in the way of a good time.
  • I think that the best part of this whole post is that I am just getting started.  I still have to get over the chemo and I still have months of physical therapy and  rehab ahead of me.  I am just getting started and this is a pretty cool place to get started.

Now, you may applause.  Applaud God for His great and tender mercy.  For how He has bared his teeth at the enemy on my behalf and on behalf of my family and how He has given me this whole new shot at being me, only a different me.  I love you all.  Mean it.

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29 Responses to “Day 30: Look At Me, Ma!!”

  1. Kara October 31, 2012 at 6:56 am #

    You are getting a standing ovation here in SC! Yay! Yay! Yay! It is so exciting to hear of your transformation. God is awesome!

  2. Brooke Slick October 31, 2012 at 7:18 am #

    I am simply blown away by this post. If I had 5 bucks for every time I’ve said “If only I could get rid of my imbalance and foot drop, I would be so far ahead of the game”. To hear your description of your cane-free stroll, without having to use your husband to balance you and to be able to just step right over a puddle, is simply priceless. I’m sure the passers by thought nothing of it, but, to me, it’s as impressive as watching God walk on water. About 2 months after I started taking Tysabri, I had a 48-hour period where I was able to walk completely normally, free of imblance and foot drop. It was like a miracle, and for that short period of time, I began to dream again. About walking for hours on end with my daughter in NYC…about traveling the world again without fear of whether or not I would be able to navigate the steps into and out of venues…about shopping till I dropped (because I could). This post is the proof in the pudding. And, I love pudding! Thank you so much. I am so, so happy for you! You can take your bow, now. lol

    • ericswife October 31, 2012 at 7:47 am #

      I totally forgot to mention the drop foot in this post!!! It was about thirty minutes into our walk that I realized I wasn’t hearing my normal odd off step. I had grown so accustomed to my left foot coming down just a little faster and harder than my right, that the sound of them landing normally forced me to take an extra twenty steps just to make sure I wasn’t hearing things! I am still quite fatigued from the chemo, and all of my old symptoms are still lurking, but the feeling of them passing is, oh so very glorious! I am pleased that this gives you hope!

  3. Ginger McBriee October 31, 2012 at 7:40 am #

    WOOHOO!! PRAISE GOD! I am beyond excited.

  4. Stacy Courtney October 31, 2012 at 7:41 am #

    With tears of joy streaming down my face, PRAISE GOD! PRAISE GOD! AND PRAISE GOD! What a sweet, sweet miracle! Love you, girl!

  5. Abbie McAdams October 31, 2012 at 8:17 am #

    What a joy to read this post! Yes, praise God and thank Him for the hospital and staff in Russia. So happy for you!

  6. Wendy Nash October 31, 2012 at 8:29 am #

    Tears, claps and praises all at once! May God continue to bless you, dear sweet Amy! Hallalujah!! Whoop Whoop!!

  7. FergsMouseTrips October 31, 2012 at 8:31 am #

    PRAISE GOD!!!!!!!!!! This is the most beautiful and exciting thing to read!!

  8. Janet Strunk October 31, 2012 at 8:36 am #

    I’m rejoicing with you what God is doing
    Through the doctors.
    And standing in agreement with you
    for strength each day and continual
    manifestations of healing.
    I enjoy reading your blogs and your outlook
    On life. It reminds me how I need to be
    thankful and not take for granted the health
    God has given me. And that we are all in a fight- the good fight of faith, not letting the enemy steal our joy our peace . . .
    God bless you!
    Janet

  9. Nikki Harmon October 31, 2012 at 8:38 am #

    Again….I read this when I got to work and I am sitting in the middle of a lobby at Dell. I have tears streaming down my face and a smile from ear to ear (people think I am a total nut case)….I am so very happy for you and I want to shout it from the mountain tops (of course there aren’t any here in Round Rock)….so everyone will hear….We serve an awesome God!!!! He takes care of us and does great things for us. He is worthy to be praised!!! Congrats to you and the blessings that you are experiencing everyday. I love going on your journey with you! Thank you for taking us along!
    Love ya!! Keep healing.

  10. Linda Luckstead Benskin October 31, 2012 at 8:50 am #

    God has given you a huge pile of spoons, Amy! We serve an awesome God. He is good, He loves you, and He has chosen to bless you. Bask in that warmth.

  11. frances bubenik October 31, 2012 at 8:59 am #

    you go girl– may God continue to guide your steps– and return you back to us soon–
    love ya– frances

  12. Aunt Lori October 31, 2012 at 9:05 am #

    You did it again. I’m just speechless.

  13. Gala October 31, 2012 at 9:59 am #

    Very glad to read this post! Good luck! You did tremendous job by doing all your journey on line. Thank you. Hope to follow your steps

    • Sue October 31, 2012 at 10:17 am #

      Each morning, the first thing I have been doing is coming to my computer and check on your recent writings…I have always been totally amazed with you but now I simply have NO words to gather up in coming close to what I see, hear, feel, know and learn about you! One heck of an amazing woman so filled with Him in every ounce of your very being and it just sloshes when you write! It is more then PRAISE time to Him whom you serve and have your being! If our tears were $$ you would be over your head in cash!

  14. Becky October 31, 2012 at 10:34 am #

    Yay God! Go Ninja Amy!

  15. Brenda Terrell October 31, 2012 at 12:12 pm #

    Amy, this is an amazing journey & your faith is such an inspiration to me. My prayer is for God to continue to work powerfully in you through His Holy Spirit living in you, to give you strength, courage, hope, peace & joy each day. Praise to Him who IS, who WAS & who IS TO COME, for His Awesome Love, Grace & Mercy!!!! Much, much love to you, my Sister in Christ. I will continue to follow your journey. Thank you for sharing.

  16. Sandy Halbert October 31, 2012 at 12:27 pm #

    Hi Amy you don’t know me but I know your mom and dad and have been following your blog of your incredible journey and I must say I am standing and you and our Lord are getting a standing ovation from me!! Thank you for sharing your amazing journey of hope and trusting God”) I will continue to pray for complete healing for you and peace for your husband and entire family”) May our Lord bless you all over today and the days to follow”)

    Love you”)
    In the Spirit of Our Lord
    sandy

  17. Monique Ruiz October 31, 2012 at 12:55 pm #

    Amy that is absolutely amazing!! I’m soo happy for you!

  18. Bill Lee October 31, 2012 at 1:51 pm #

    THE BLOG WE’VE ALL BEEN WAITING FOR!!! Thank you God! Thank you doctors and nurses! And thank you sister for sharing it with us!

  19. Janette Scarborough October 31, 2012 at 2:11 pm #

    BRAVO … BRAVO … ENCORE … ENCORE … BELLA … BELLA … HIP HIP HOORAY AND ALL THAT JAZZ BABY!

  20. Janette Scarborough October 31, 2012 at 2:13 pm #

    I know I have said this so much but it needs repeating…GOD IS GOOD… ALL THE TIME!

  21. Chera Cox October 31, 2012 at 2:59 pm #

    Awesome!! All of this gives me goose bumps because it is so CLEAR to see how God is working in your life…He is so GOOD to us! Love ya!

  22. Jhansi October 31, 2012 at 3:11 pm #

    I have no new words, but wanted to contribute my cheers!!! for your experiences and the wonderful days ahead. You are an amazing woman! Again, I thank you for sharing your experiences. You and these are encouragement to me each day.

  23. Pat Walt October 31, 2012 at 4:40 pm #

    Praise! Praise! Praise! JOY! JOY! JOY! Thank you, Lord, for healing Amy!

  24. Nathan October 31, 2012 at 5:21 pm #

    Clapping is for sissies…I’m crying like a real man! How else can we respond in the face of God’s glory and goodness? So happy for you and your family. I pray God will continue to lead you in a cane-free path.

  25. Mike Glenn November 1, 2012 at 11:00 am #

    WOW!!!!!! Look at all these replies!!!! So many have (and still are) praying….However, it is time, today, to REJOICE in the Lord….As Paul exclaimed in Phil 4:4 “Rejoice in the Lord always. I will say it again: Rejoice!” We do REJOICE with you in the Lord for His abundant goodness and mercy….These bullet points were magnificient. So Praise-Worthy…..Thank you,,Lord, for the way You have taken care of Amy, for Your marvelous provision….Yes! We do praise your name with clapping, crying, hands raised and shouting to the heavens that You alone are worthy to receive the glory through what You have done in Amy….
    MIKE

  26. Patricia Larson November 1, 2012 at 11:36 am #

    This is so wonderful! The things we all take for granted like long walks and unlimited shopping time, now you are able to feel the joy of this and we are all realizing how we must not take our daily tasks so lightly.
    Praise God!

  27. Louise Miller November 5, 2012 at 2:53 am #

    Yours story is amazing, I am very happy for you.
    My daughter Tina is having HSCT in India in December we are praying for success for her also.
    I hope you continue to improve
    Love from Louise Miller in Australia

Honest Truth About Me: I'm going to need a lot of cheer leading to see this through. Your comments and encouragement mean the world to me.

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