Day Six: Can’t Stop Good Hair

8 Oct

I tried, but you just can’t keep good hair down. 😉

Last night I received two stem cell mobilizing injections.  This brings my count to 6 of 8.  Tonight I will receive the final two.  This morning I am receiving my final dose of steroids.  The closing of this stage of treatment means that I am gearing up for stem cell collection over the next day or two.  Some patients get to have their stem cells collected through the vein in their arms, but Dr. Fedorenko has decided to play it extra careful with me and go through a catheter in my jugular vein.  He is a fine doctor, so I intend to play along, but my limited knowledge of jugular veins makes me nervous about the good doctor’s plans with mine.  When in Russia…

My pain level continues to slowly ramp up.  This is a good sign that I am growing lots of good stem cells for my new and improved immune system.  Good sign.  It is a good sign.  Very good sign.  (It is good to repeat such things for personal edification.)

Thank you again for your countless prayers and well wishes.  I am proud of my husband, my children, and all those who surround us.  We are the team that will show the world that auto-immune dysfunction is not a forever sentence.  Go team ninja!

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10 Responses to “Day Six: Can’t Stop Good Hair”

  1. Brooke Slick October 8, 2012 at 7:12 am #

    Amy, as I sit here every morning in rural Pennsylvania, anxiously awaiting your posts from Russia, I can’t help but think how lucky I am to have stumbled onto your blog earlier this year. I’ve come to the conclusion that it’s fate. Why? Because, it’s not often that, out of nowhere, you say “Hey, I’m going to Google “Amy goes Ninja on MS, today!” ha ha All I know is that it’s rare to find someone with such a similar sense of humor as mine, who just so happens to have MS, as I do. I am still RRMS, however, I fear that I may be exhausting that title. Hoping that the MS police (my neurologist) don’t find out that I’ve been carrying a fake I.D., and bump me up to PPMS. I’ve been on Tysabri since July 2011, but not after having been on Betaseron, Copaxone, Gilenya (before it was on the market), Ampyra, Solumedrol, blah, blah, blah, The Tysabri seems to have have stopped the progression of my MS (based on MRIs), but has exacerbated all of my old symptoms, much like a grumpy ole bear being awoken from their winter slumber, he’s a little pissy at the moment. However, I am well aware that if the sands of Tysabri’s time run out, and are no longer effective, that my ultimate option may be stem cell treatment. Because of that, I work hard to stay in shape and stay as up-to-date on stem cell research as possible. Reading articles doesn’t hold a candle to having access to your blog and walking (ok, limping {I have foot drop} through the process with you first hand. Ok, I’m rambling. In conclusion, thank you for entering into the unknown, in order that others may do so more safely in the future. Oh, and one more thing, I vaguely remember that you were recruiting cheerleaders,so here goes nothing from a former one…GO AMY, GO AMY, GO, GO, GO AMY!!! Respectfully, Brooke Slick

    • ericswife October 8, 2012 at 7:48 am #

      Keep reading everything you can find! The options are not easy for people like us, but they are out there. Tysabri will take you out of the running at a lot of hospitals for about six months after you’ve stopped taking it, so keep that in mind. I owe more than I can say to other MSers who live blogged their experiences and I am thrilled to pay it forward. Thank you for popping in and for giving me the cheer. I am hours away from a catheter in my jugular vein, so it has just gotten very real. 🙂

  2. Janelle October 8, 2012 at 7:36 am #

    OkOKOK….just have to say a few words. When u get back to Austin,Texas….USA…..We must revisit Houston’s restaurant (now Barletts) for a walk down the memory food lane.
    For now just sending u lots and lots of “air hugs”!
    Janelle

    • ericswife October 8, 2012 at 7:49 am #

      I am all over that! I could use the biggest, sloppiest burger they make right now. I love you lots and look forward to the date!

  3. Kathy Russell October 8, 2012 at 8:08 am #

    Hey Amy, following you, step by step!! I read a comment about winter and young ladies’ skirts. Well, sista, you ain’t seen nothin’ yet!! If you are still there when there is snow and ice on the sidewalks, you will see the same short skirts and way high heels booking down the sidewalk and crossing the street like nobody’s business. Those legs were not made in the USA, that’s for sure!! We were always amazed how they could dress and walk in the ice and wind, looking like a million rubles!!

    • ericswife October 8, 2012 at 8:12 am #

      I don’t have a bucket list, but if I did, it would include being a crazy millionaire and coming back here to buy my entire wardrobe. These ladies dress like no lady I’ve ever seen!

  4. Sarah S Chicken October 8, 2012 at 10:07 am #

    Good luck with your jugular vein. All I know about them is that they have a lot of blood in them. Love you and have a good day with your spiky hair.

  5. Kathy Tope October 8, 2012 at 9:09 pm #

    All I know about jugular veins is that when they’re cut, people, uhm…well…it just seems like most people try really hard not to cut them or make holes and stuff stuff in them. Those crazy Russians! But I guess if it’s going to save your life and all, let the Veins Begin! Ha, get it? Okay, can you hear me because I am really funny over here! Hello, is this thing on?

    • ericswife October 8, 2012 at 9:42 pm #

      When my sweet Phoebe had her tubes put in, Eric made the same jokes and was pummeled by sweet Phoebe’s husband. Never tease a lady with a tube in her jugular. Especially a tube that started squirting over night. lol. Love you. Mean it.

      • Kathy Tope October 9, 2012 at 5:24 pm #

        Amy…I am sorry to tease…I got really (read: REALLY) emotional about you last night and after slobbering all over myself I was trying to find a lighter note—if there is such a thing in all of this. I think it’s killing me to have to watch, helplessly, from so far away. I love you friend, and I am here–on my face, praying for you. Praying for your grace to be sufficient unto the day. That He may be perfected in you through your weaknesses. I cannot stop thinking/praying for you, even through the night I wake with you on my mind. Hugs. Don’t know how to do that cute little heart thing but if I did, there would be one!!

Honest Truth About Me: I'm going to need a lot of cheer leading to see this through. Your comments and encouragement mean the world to me.

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